I thank the committee for inviting me to share my perspectives and research findings and engage with members on the topic of a health-led approach to drug use and policy in Ireland. Today, I will be discussing the research output of Service Users Rights in Action, SURIA, which is a service user-led group that campaigns for rights-based methadone maintenance treatment and other forms of opioid substitution treatment. One of our principal objectives is to recognise service users as consumers and partners as opposed to passive recipients of public healthcare. As such, we advocate for a symmetrical partnership dynamic to inform the doctor-client interaction in both clinical and GP settings. I am referring exclusively to methadone care here. We also advocate for a review of the overuse of urine sampling and the promotion of dignity and respect, with a renewed emphasis on re-integration, to inform any health-led response to drug policy and practices pertaining to opioid substitute therapy treatment in Ireland.
SURIA and my own research argue that Irish methadone maintenance treatment, as an example of harm reduction, often paradoxically produces harm in the lives of clients. We highlight the lack of progress in clients' lives, poor reintegration, the overextension of power into the lives of clients, including in matters that have little to do with drug use, and the poor quality of life for those who expected to be helped by methadone services. There are currently approximately 12,000 people availing of methadone services in Ireland.
My own research, and that of SURIA, is routinely underpinned by the service-user narrative and experiences of those engaging with OST, primarily methadone, using a human rights perspective that traces the progressive realisation of rights instruments pertaining to the highest attainable level of healthcare, that is, Article 12 of the International Covenant on Economic, Social and Cultural Rights, among a number of other rights instruments. Our rationale for this approach stems from the fact that methadone is a public health service and therefore clients should enjoy the same rights and treatment as others who are accessing treatments for other illnesses.
The current profile of the Irish service users suggests that many are trapped in clinical settings with little opportunity to engage with society in a meaningful manner. To give a brief overview of this cohort, according to SURIA's research, I will go through some points. Some 66%, or two thirds, are aged 35 years or over; almost half are engaging with OST or MMT services for up to ten years; one fifth are using methadone maintenance treatment services for over 20 years, and one in ten for over 26 years; and 83% are not engaging in employment or education.
I wish to reiterate that I am not critiquing the amount of time people are spending on methadone services. That is their own choice and it is a perfectly fine choice if that is what they want to make. What I am highlighting is that people are trapped in these clinical settings for long periods of time, where they do not have a high standard of life and poor opportunities to enter, or sometimes re-enter. We talk about reintegration; sometimes it is integration we are talking about here.
SURIA research continuously demonstrates that those using methadone services often allude to institutional stigma - that is, stigma from within services - poor treatment practices and not being afforded any input into their own service provision. This briefing is underpinned by five datasets. SURIA has been carrying out this research since 2012. It is a longitudinal monitoring of how methadone services are provided to service users. We are tracing the progressive realisation of a number of rights instruments, with a particular emphasis on the right to health. As part of this longitudinal research approach, our work has repeatedly highlighted that these services are substandard, stigmatising and often harmful for those seeking refuge from problematic drug use.
SURIA’s work is underpinned by four key principles that have continuously emerged from our research. They include supervised urinalysis, the lack of a care plan, choice of treatment and meaningful review, and the absence of any form of an independent and robust avenue for complaint for clients who are coming across issues in their service provision.
SURIA is not the first to draw attention to the shortcomings of the Irish methadone system. Apart from a number of research articles that illustrate the poor practices, inept training and other failings of methadone services in Ireland, the HSE itself commissioned the publication of the Farrell report back in 2010. This was an independent evaluation, funded by the HSE, of methadone services in Ireland. The report was a damning indictment of Irish services and suggested that MMT was entrenched in urinalysis. The practice of continuous and relentless testing embodies the infantilisation and perception of surveillance that many clients allude to. However, it is the over-reliance on testing that advances this critique. Urinalysis is used to routinely test service users and to restrict heroin use but SURIA's prior work demonstrates that urinalysis is not just an important facet of contemporary methadone services in Ireland; rather, the entire service is predicated upon the result of a test.
We have come across service users after collecting qualitative data across our five longitudinal tests and this statement always stands out to me. I remember a woman saying to me in an interview, "I do not even think my doctor knows what I look like because when I go in and see him, he stares down at the screen, and my whole progress, my whole dose and my takeaways are all determined by a sample on whether I am drug free or, like the language used in the clinics, clean or dirty." This becomes internalised. If you get told you are dirty every week, that is going to have severe ramifications. What we are talking about here is meaningful engagement with service providers.
I wish to allude to some of the reservations I have from my own personal experiences and those of others I have encountered in a decade of research on Irish methadone services, and this is around the pivot to a health-led response. I believe it is crucial that a health-led response is clearly defined, drawn from international literature and best practice, and underpinned by the contemporary evidence base. I would caution about the overmedicalisation of methadone services, considering that addiction is a complex nexus of factors, many of which are associated with low labour-market engagement, low educational attainment, and generational socioeconomic deprivation and poverty.
An overemphasis on health has the potential to undermine reintegration into society. Recent SURIA research explicates that 83% of our research participants, from a cohort of 337, are not currently in employment or education. While I see the health-led approach being really beneficial in taking drug use away from the criminal justice system, I believe we need to reassess that when we are talking about methadone services because it could potentially turn into an even greater emphasis on urinalysis and testing, and less emphasis on reintegration and quality of life. These are the most important things for methadone care.
It is crucial that methadone services are holistic, addressing all aspects of addiction and promoting recovery in all its forms. This should be underpinned by a clear move away from continuous sampling, with standardised care plans alongside meaningful review of treatment. This should replace urinalysis as the principal tool of determining the trajectory and conditions of treatment.
The continued employment of control through sanction, again underpinned by urinalysis, does little to promote dignity and respect. This is particularly evident in the use of language by service users throughout our five reports. Many participants express a desire to be “clean” - that is not my language - which suggests that they were once “unclean” or “dirty”. This is the language that is routinely used by services, and by those employed to form therapeutic relationships with clients. Instead, the asymmetrical power imbalances that we repeatedly discuss in our reports are still central. The normalisation of poor, non-evidence-based treatment leads to internalised low expectations of anything being different from the service user's perspective. SURIA research is an avenue for these unheard voices to be brought into the policy landscape, like they are today. Some examples of qualitative data we have collated from service users include: “I am [being] treated like a scumbag junkie”; “I can’t get a job because I have to go to the clinic every day except Christmas ... when it is closed”; and “I hate the way people look at me differently [when I walk] ... into the clinic”.
It should also be noted that Irish methadone services are inhibited by poor practices, a lack of training of staff and a resistance to follow international best practice and literature. I wish to reiterate that methadone is not the primary problem here as a medication. Methadone does what it says on the tin. It is not perfect. Every service user who enters that arena is well aware of this. It is not perfect but it has the potential to change lives if people are trained properly in how to prescribe and treat service users.
I am almost finished. SURIA research has continuously captured a life in which vulnerable people are regularly dehumanised, disempowered and have arguably been forgotten by stakeholders who are responsible for their care. As Irish harm-reduction services still fall short in the realisation of the highest attainable level of healthcare, our public health sector continues to hurt, punish and blame many service users who are homeless, have experienced trauma and struggle to navigate a world of frenetic competition during a cost-of-living crisis. To continue to do so casts a dark shadow on Irish society. For Service Users Rights In Action, the current Citizen’s Assembly on Drug Use in Ireland will be considered a failure if the plight of Irish methadone service users continues to be overlooked.
Again, I thank the committee for inviting me today and given the extent of the issue, I urge members to consider the evidence-based points I have made today. I would be more than happy to answer any questions the committee might have when everybody else has finished speaking.