Good morning to the Chair and members of the committee in the room and online. I thank them for the invitation to discuss child and adolescent mental health services, the challenges facing patients in need of neurorehabilitation healthcare services and the programme for primary care centres and decisions on their locations. I understand the committee is also interested in the current Covid-19 infection rates and some resulting visiting restrictions. I have attached a briefing note outlining the current position in respect of that. I understand the committee is also interested in discussing the issue of pay and numbers.
I am joined, as the Chair has noted, by my colleagues Ms Hoey, chief people officer; Mr. Canavan, the new regional executive officer for HSE west and north-west in our six-region structure; Mr. O'Connell, national director of capital and estates; and Dr. Amanda Burke, who is an executive clinical director, a consultant child psychiatrist and also now the national clinical lead for youth mental health. I am supported by Ms Sara Maxwell.
Child and adolescent mental health services is a specialist mental health service for approximately 2% of children and young people who have a moderate to severe mental health disorder. For these children and young people it is particularly important to have access to integrated and person-centred supports provided by a multidisciplinary team of skilled professionals. However, CAMHS is challenged by a growth in demand for services, coupled with the impact of ongoing staff retention and recruitment difficulties. These challenges, alongside the Mental Health Commission review, the reports of the Maskey review, the prescribing audit, the audit of compliance with CAMHS operational guidelines and qualitative patient experience research have demonstrated the need to put national focus on improvements to CAMHS, bringing together multiple strands of activity. The national child and youth mental health office was established in September 2023 by the HSE and led by Dr. Burke and the child and youth mental health action plan is due to be published in the coming months. I want to make it clear we are not waiting for this to make improvements with some critical issues that have been well established.
There were 23,874 referrals to CAMHS in 2023. Waiting lists for CAMHS services remain too long in some areas of the country, and I acknowledge the huge pain and suffering this can cause for young people and their families. Between 2019 and 2022, our number of appointments delivered increased by 10%, while demand grew by 16%. Specific waiting list initiatives are under way in six areas of the country, targeting those who have been waiting the longest. At the end of May 2024, a total of 3,842 children and young people were waiting to be seen. This is 789 less than May 2023. It is important to stress that 97% of urgent referrals are responded to within three days, 57% of non-urgent referrals are responded to within 12 weeks and 87% overall are seen within 12 months. That is based on the most recent data for the health service from April of this year.
Referral and access pathways can be complex and frustrating for families to navigate. Work has commenced to develop a single point of access system in addition to validation of existing waiting lists, which will allow for closer integration and better working with primary care psychology waiting lists. The net point is that children are often to referred to multiple lists arising from the same concern. An assessment protocol for young people with suspected autism has also been developed. That will significantly aid the management of waiting lists.
On neuro-rehabilitation services, I am conscious there are members of the Neurorehabilitation Alliance of Ireland in the Gallery. It was a pleasure to meet with them briefly on the way in. The HSE is leading the delivery of the national strategy and policy for the provision of neuro-rehabilitation services in Ireland – the implementation framework. The success of stroke and trauma care has thankfully improved survival rates for conditions requiring neuro-rehabilitation. However, this has widened the gap between the demand and availability of specialist neuro-rehabilitation services for patients. We are reconfiguring our services to population-based managed clinical rehabilitation networks. It is a multitiered system that comprises a number of levels, which I set out in my statement for members. They go from national specialist service to local community teams on the front line in communities. A national mapping process has been undertaken to establish the baseline from which to understand and plan the inpatient bed configuration. This will inform the reorientation of existing neuro-rehabilitation beds as well as further submissions that will be made in 2025 Estimates process.
Regarding the community-based teams, following Covid-19 delays, demonstrator projects in two CHO areas, areas 6 and 7, went live in April 2023. Those two former CHO areas would now represent two of our new regions. Funding to expand these existing teams and establish two additional teams in CHOs 2 and 4 has been made available in the national service plan of 2024 and is currently progressing. It is intended to geographically align teams to the new health regions and establish two final teams after CHOs 2 and 4.
On the primary care centre programme, a national review of proposed primary care centre locations was carried out in 2012 whereby locations were prioritised on the basis of service need, availability of appropriate existing facilities and the level of deprivation in each of the areas considered. As part of this review and prioritisation exercise, the most suitable delivery model for each centre was also set using one of three mechanisms: the traditional build route by HSE itself; public-private partnership bundle, which was organised on behalf of the State by the Department of Finance; and the operating lease model, the latter being the most used and most successful. Since 2012, local and regional reviews in the intervening years have changed locations. Some 294 identified locations are included in the programme and 175 of those have been delivered to date through the three mechanisms. Fourteen came as one bundle from the PPP between 2017 and 2019. The operating lease model has been the primary mechanism, with priority and others delivered by HSE itself.
Early in 2023, a number of landlords and developers raised concerns about the financial viability of some operating lease model priced offers due to inflation rates and other economic factors impacting the construction and investment sectors. A review was undertaken, incorporating legal advice. Following the review of the overall operational lease model in 2023, all future primary care lease locations will be advertised via the e-tenders platform with a two-stage process. Six primary care centres are planned to open in 2024, a further seven to open before the end of 2026 and eight more by early 2028, and the latter have been subject to planning approvals.
On pay and numbers, at the end of May of this year, employment levels show there were 148,159 whole-time equivalents, WTEs, employed in the health service and section 38 hospitals and agencies. That equated to 167,000 directly employed people. The overall increase since December 2019 stands at an unprecedented 28,346, or 23.7%, and when adjusted for variations, 22%. The staff category reporting the greatest increase is nursing and midwifery at 9,504, or 24.9 %, and 8,471 when adjusted. The staff category with the greatest percentage increase is management and administration at 34.4% - 6,489 WTEs - and reduced slightly when adjusted. The majority of these posts support front-line services. These continued excess numbers above funded levels result in a continuation of the pause on recruitment of a number of grades and exemptions in others. This is a challenging environment for services to operate in. I hope to bring clarity to that position shortly.
I am currently engaged with the Departments of Health and public expenditure regarding the overall financial position. I am happy to report that these discussions are extremely positive for future planning and overall sustainable workforce numbers.