Good morning. IBEC welcomes the invitation by the joint committee to discuss the IBEC Better Care, Better Business report. The importance of care is a growing and universal issue, not only for individuals and families, but for the business sector and society in Ireland. For too long, care work has been invisible work, largely hidden and unmeasured, and as such, often undervalued, yet the economy would cease to function without care, as it makes possible much of the paid work driving the market economy. It is essential work, critical to the social infrastructure on which societies and economies are built. As such, there is a need for a fundamental change in how we value care and caregivers. While acknowledging the breadth of issues surrounding care, IBEC deliberately chose to focus on this report on long-term care and the carers who are providing care and support for our family members or loved ones with additional needs, a chronic illness, physical or intellectual disability, mental ill health, palliative care needs, or age-related frailty. Our blind spot regarding these carers is having a significant and growing impact.
Without strong care structures and supports to meet the needs of the growing number of individuals needing care, those providing care and those juggling work and care, there are likely considerable repercussions for the labour market, economy and society. Employers and Government have a vital role to play in addressing the challenges surrounding long-term care. There have been several positive developments surrounding care, such as improvements in carer's leave entitlements, the introduction of the long-term carer's contribution scheme to support family carers qualifying for the State pension, improvements to income disregards for carer's allowance, and an increase in the hours a person can work while caring. However, despite an increase in investment, it is under-resourced and fragmented. Carers and those in need of care are not sufficiently or consistently supported.
Despite commitments from the Department of Health to introduce a new statutory home support scheme, there is still no statutory entitlement to receive formal home care or home support. The Government has under-delivered on targets with over 40,000 home care hours left undelivered on a weekly basis and an additional 6,000 individuals who have been approved for funding remaining on the waiting list for care because no care workers were available to provide this. Waiting lists for home care and other social services demonstrate a considerable existing gap between the demand and supply of adequate long-term care services, something that is at risk of widening if significant investments are not made.
There is a knock-on impact too to the broader health system and on hospital beds as there are delays in discharging patients due to a shortage of available carers for approved home support packages or as people await funding approval for home support hours. This will have consequences for Government commitments in the programme for Government and Sláintecare, which promised the right care in the right place at the right time and to enable older people to remain living as independently as possible in their own home for as long as they can. Without change, this cannot be achieved.
This issue is gaining greater urgency given Ireland’s ageing population, the increase in disability and chronic illness. While older people represent only one cohort in need of care and support, the world’s population is ageing and Ireland’s population is ageing faster than elsewhere in Europe. Those aged 65 and over are projected to increase to one in six by 2030. That means that at some point, most of us will be caregivers or will need caregivers. However, the professional care workforce is aging too with 42% of home support care workers aged over 60 and coming up for retirement in the next few years. Countries like Ireland that rely on both local and international workers to address shortages in the recruitment of professional carers will be under significant pressure to fill roles. It is believed we will face a global shortage of 10 million health and care workers by 2030, which will coincide with estimates of an increase in the demand for home care - a precarious situation and one that will result in a greater reliance on working carers, that is, individuals who are juggling employment with caring responsibilities. To keep pace with existing and future demand for long-term care, a sizeable expansion of existing services and a re-imagining of long-term care in Ireland will be required.
Of particular focus to IBEC’s report were working carers and the structures, care solutions and professional care sector supporting them to balance work and care. Estimates of informal carers are conservative as many people do not identify themselves as carers but rather partners, parents or children of loved ones with a particular care or support need - some in employment, others not. Census 2022 identified over 299,000 people providing regular unpaid care, that is, carers aged mainly between 40 and 64 years. We know that most of the long-term care is provided by women and this is borne out by the 77% of recipients of carer's allowance, 81% receiving carer's support grant and 83% of those on carer's benefit, all of whom are women. This also means that consequences of gaps in support will impact women to a greater level with a knock-on effect to their labour market participation, pay, pension and the gender pay gap.
Findings of research carried out by Amárach for IBEC on working carers - those combining informal care with paid employment - echoed findings in other research studies. Working carers were challenged by their dual responsibilities often feeling they were not doing a good job either at work or at home, struggling with finding and affording the right supports or services and often having to consider difficult choices around their work and care-giving responsibilities. Most respondents agreed it was hard to get everything done or to balance work and care. Over a third mentioned the negative impact of caring on their ability to do their job and on career progression. Respondents coped at different times by taking paid or unpaid leave, reducing working hours, frequently missing work or leaving the workplace entirely. Supports were deemed inadequate and the resulting strain on mental health and finances hampered their well-being.
We believe addressing this potential crisis of care will require action in four key areas. Supporting those in need of care will require increased funding and availability of appropriate home support hours and packages, which avoids the postcode lottery in accessing care. We are talking about a continuum of care that provides real choice and quality options, and supports users in leading active, healthy and dignified lives and a statutory home support scheme to finance home care like the fair deal. While legislation, regulations and standards are believed to be at an advanced stage, they need to be urgently implemented.
Second, addressing supports for carers will require the delivery of a fully funded carer's guarantee with a core basket of services like emergency respite care, training and crisis support, which needs increased funding and better integration as it is currently fragmented and inconsistent. A review is required of all support schemes, eligibility criteria and means tests as they are deemed inadequate, restrictive and not fit for purpose.
Third, we need to address recruitment and retention in the care sector with a national campaign to promote the value and profile of careers in care. This must include career paths, development and professionalisation like the work done around early learning and childcare through things like additional funding to the skills training funds in SOLAS and increasing the capacity of healthcare traineeships.
A review of the eligibility criteria for State benefits, particularly the hours versus days approach, is required to ensure we are not preventing people from remaining connected to the labour market and to support more carers into the workforce.
Finally, we need to future-proof our workplaces by creating a culture that supports the growing number of working carers and keeps them connected to the labour market with formal and informal flexibility to avoid the isolation and financial challenges that occur if one must give up working. Some employers have engaged with the likes of Family Carers Ireland and its Caring Employer programme to support and empower working carers.
The challenges facing the care sector are multifaceted and complex but are not insurmountable. By working together, Government, industry and stakeholders can develop effective solutions that ensure the sustainability and quality of care services in Ireland. We must acknowledge the need to act and invest now for working carers and those in need of care while addressing the issues causing staff shortages in health and care services. I thank members for their attention. I look forward to their questions and to our continued dialogue on this critical issue.