I begin today by extending my and Sinn Féin's deepest sympathies to the family of Saoírse Ruane. She inspired all of us in this House. She also inspired the toy show appeal. She inspired all of us right throughout the State in her battle with her illness. Ar dheis Dé go raibh a hanam. I am thinking of all her friends and colleagues and, especially, her family today.
Before the referendums tomorrow, I also make a final appeal to voters to come out and vote. We see the proposed changes as small steps forward and, on balance, we have advocated for a "Yes" vote in both referendums. Whatever the results, however, this must be a catalyst for meaningful change for people with disabilities, those who need care and their carers. I appeal to the Government to deliver the long-overdue rights and supports badly needed in this context.
Cluineann muid go bhfuil comhdháil náisiúnta ag an IPHA inniu agus tá sé ag díriú aird arís ar an am atá á ghlacadh ag an bhfeidhmeannas sláinte le drugaí úra agus drugaí a thig leo tacaíocht a thabhairt do dhaoine agus beatha daoine a shábháil a thabhairt ar an margadh. Tá sé ag glacadh i bhfad an iomarca ama é seo a dhéanamh. Caithfidh athrú teacht air seo. Tá staidéar déanta fá dtaobh de agus tá muid ar chúl san Eoraip ina thaobh. The IPHA is holding its annual conference today and it has highlighted the length of time it is taking the health service to approve the availability of new drugs. This has the potential to make real life-changing differences to the lives of patients in all our constituencies in every part of this island. Many innovative and life-changing drugs that save lives are produced here in Ireland, in the Tánaiste's own home county of Cork and elsewhere. Many Irish patients, though, are among the last in Europe to receive these drugs. How is this fair? Drugs are being produced down the road, but we are some of the last in line in Europe to actually get access to them. Careful consideration of drugs is needed and a balance must always be struck when we are looking at the issue of new drugs, but for those who are cancer patients or those with a rare disease, though, the industry has very clearly said Ireland is a laggard in this regard. When we compare ourselves with our European partners, we are at the bottom of the list in relation to access to these life-changing drugs. To add injury to insult, we also have a two-tier system where patients who have private health insurance get rapid access to these drugs once they are approved by the EMA, while patients who do not have the money for private health insurance must wait on a long, drawn-out process for the HSE to approve these drugs. In some cases, this can take years.
We all know the human impact of this situation. We also know what the problem is here. We have seen the reports being published in relation to this issue. They refer to a process that is convoluted and beset by staff and capacity problems. If staff are not there to process these approvals, then the problems and the delays are going to continue. There is uncertainty about the future funding streams for drugs. We saw this in the context of the recent budget where the Government did not allocate any new money for the provision of new drugs. Sinn Féin, the industry and professionals called the Government out on this issue, and it had to do a U-turn on it. This is not the way to manage this crucial issue. The problem is we have a steady flow of new drugs coming on stream, but we do not have multiannual funding or adequate staffing to ensure patients can secure timely and life-saving access to them. The average wait time in this State is around two years for new drugs to be approved by the HSE and this is simply far too long. When the now Tánaiste was on this side of the House, I heard him raise these exact same issues. I refer, for example, to Orkambi and its use by cystic fibrosis patients. Nothing has changed, despite the Tánaiste and a Fianna Fáil Minister for Health being in government for four years. The Tánaiste, therefore, is well aware of the issues and the length of time involved in this regard.